The Department of Health Services Research and Policy is home to the Health Experience Team for the ANU’s Grand Challenge project, ‘Our Health In Our Hands’ (OHIOH).
In addition to academics and clinicians from diverse backgrounds, the Health Experience Team includes people living with Multiple Sclerosis (MS) and Type 1 Diabetes (T1D). This enables us to harness their expertise and ensure that their experiences and preferences are embedded in the research from design, through data collection, analysis, and implementation. We refer to them as our ‘research partners’.
To date, our research partners have brought enormous value to our team and OHIOH. Amongst other things they have:
- Taught us about living with MS and T1D, and the challenges this brings, including work, school and family life;
- Introduced us to other people living with MS and T1D;
- Informed our study design, particularly the relevance of specific questions and methods of data collection.
The Health Experience Type 1 Diabetes Team
Ms Madhur Chhabra, Mr Lachlan Pedley, Dr Anne Parkinson, Professor Chris Nolan, Ms Ellen Brown, Ms Karen Brown, Ms Liz Pedley, Ms Kristine Wright, Dr Jane Desborough.
The Health Experience Multiple Sclerosis Team
Back: Dr Anne Parkinson, Ms Danielle Squire, Ms Helena Paul, Mr Jack Leayr, Associate Professor Christine Phillips, Dr Vanessa Fanning, Ms Janet Drew
Front: Dr Anne Bruestle, Associate Professor Hanna Suominen, Dr Jane Desborough, Ms Katrina Chisholm.
And our virtual research collaborators Ms Kristal Hannan (T1D) and Mr Mark Elisha (MS)
You can learn more about OHIOH at the following website: https://www.anu.edu.au/research/research-initiatives/our-health-in-our-hands